Caregiving Resources
Central Florida is blessed to have an abundance of resources for family caregivers. This is a partial list of both local and national resources.
AARP RESOURCES
Find a local mutual aid group, learn about helpful resources, request a phone call from an AARP volunteer, and more.
Website: https://aarpcommunityconnections.org/
Prepare to Care: www.aarp.org/preparetocare
ADVENTHEALTH MEMORY DISORDER CLINIC
Website: https://www.adventhealth.com
Phone: 407.392.9237
AALZHEIMER’S ASSOCIATION
NATIONAL
Formed in 1980, the Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support, and research.
Website: https://www.alz.org
Phone 24/7 Helpline: 800.272.3900
Caregiving Support: https://www.alz.org/help-support/caregiving
ALZHEIMER’S ASSOCIATION, CENTRAL AND NORTH FLORIDA
Education and support to all those facing Alzheimer’s and other dementias throughout our community.
Phone: 800-272-3900 (24/7 HELPLINE)
Website: www.alz.org/cnfl
Program: Brain Bus Virtual Education Programs
Program: Caregiver College Series
Program: Get Free EBooks
ALZHEIMER’S AND DEMENTIA RESOURCE CENTER
Community resource center dedicated to providing support and hope for families and individuals caring for a loved one with some form of dementia.
For those of you living in Central Florida, or that know of someone living in Central Florida, these resources may be of interest to you.
Alzheimer’s & Dementia Resource Center (ADRC) is now live with Zoom We are now live with Zoom based Support Groups, Michael’s Moments program, and workshops
You do not have to be an existing client to access these services; simply call their office number below and leave a message. That message rolls into a voicemail notification and one of the staff will return the call and get the caller set up!
Phone: 407-436-7750
Website: www.adrccares.org
ALZHEIMER’S FOUNDATION OF AMERICA
AFA was founded in 2002 by a caregiver whose mother lived with Alzheimer’s disease from 1980-1992. At that time, there was little information available and nowhere to turn for support. His goal was to make sure that no other family living with Alzheimer’s disease would have to go through the journey alone. The mission of the Alzheimer’s Foundation of America (AFA) is to provide support, services and education to individuals, families and caregivers affected by Alzheimer’s disease and related dementias nationwide, and fund research for better treatment and a cure.
AFA operates a National Toll-Free Helpline (866-232-8484), staffed entirely by licensed social workers, which provides support and assistance to callers, as well as connect them with resources in their area, no matter where in the United States they live. The helpline has grown into a seven-day a week service. AFA’s national network of more than 2,000 member organizations serves families affected by Alzheimer’s disease and other dementia-related illnesses in each of the fifty states.
Phone: 866-232-8484
Website: https://alzfdn.org
AMERICAN CANCER SOCIETY
A cancer diagnosis affects close friends and family too. Find out what to expect if you become a caregiver for a person with cancer, and get tips for making sure that you take care of yourself as well.
Website: www.cancer.org
Caregiving support: https://www.cancer.org/cancer/caregivers.html
AMERICAN HEART ASSOCIATION
Caregiver Support: We’re here for you because we’ve been there too. You hold it all together, but caregivers like you also need support. Find tools and resources to help you on your journey.
Website: www.heart.org
Caregiver support: https://www.heart.org/en/health-topics/caregiver-support
BLUE CROSS BLUE SHIELD DEMENTIA REPORT
CARE.
Connecting families with quality, local caregivers. Our purpose is to help every family at each stage of care and today, we’re helping millions of families at home and at work across 17+ countries and growing.
We’re using technology and innovation to solve one of the greatest human challenges.
We’re at the forefront of safety, advocacy and thought leadership.
We’re obsessively attuned to our customers’ needs because we ARE our customer.
We’re devoted to families of all types and backgrounds because we ARE families of all types and backgrounds.
We’re here for all your life, for all families, for all the reasons that matter.
Website: https://www.care.com
CAREGIVER ACTION NETWORK
Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
Caregiver Help Desk: 855-227-3640
Website: www.caregiveraction.org
E-mail: info@caregiveraction.org
CAREGIVINGYEARS.COM
Family caregiver training, assistance for families in need, supplies, used equipment, devices and certification programs.
Phone: 407-304-6534
Website: www.caregivingyears.com
CLINCLOUD
Clinical trial services provider. http://myclincloud.com 407-636-4031
Phone: 407-636-4031
Website: www.myclincloud.com
DEMENTIA CARE AND CURE INITIATIVE (DCCI)
Engage communities across the state of Florida to be more dementia caring, promote better care for Floridians affected by dementia, and support research efforts to find a cure.
Phone: 800-963-5337 (Elder Hotline)
Website: www.elderaffairs.state.fl.us/doea/dcci
DEMENTIA-FRIENDLY DINING (CFLDFD)
Dementia-friendly Dining restaurants are food service establishments that provide friendly, safe, and enjoyable places where families and friends may bring their Loved Ones who are living with Alzheimer’s and other forms of Dementia. Key criteria among dining establishments are a private dining area, a quieter time and day, and willing management and staff who will receive training for providing quality services that meet the special needs of clientele with dementia and their families.
Contact: cfldfd01@gmail.com
Website: www.CentralFloridaDementia-FriendlyDining.com
DEPARTMENT OF VETERANS AFFAIRS
Website: www.va.gov
VA Caregiver Support Program: https://www.caregiver.va.gov
Program of General Caregiver Support Services (PGCSS)
PGCSS is the core of VA’s Caregiver Support Program (CSP). The program provides peer support mentoring, skills training, coaching, telephone support, online programs, and referrals to available resources to caregivers of Veterans. The Veteran must be enrolled in Department of Veterans Affairs (VA) health care and be receiving assistance from a caregiver in order for the caregiver to participate.
Program of Comprehensive Assistance for Family Caregivers (PCAFC)
The U.S. Department of Veterans Affairs (VA) Program of Comprehensive Assistance for Family Caregivers (PCAFC) offers enhanced clinical support for Family Caregivers of eligible Veterans.
VA Aid and Attendance benefits and Housebound allowance
VA Aid and Attendance or Housebound benefits provide monthly payments added to the amount of a monthly VA pension for qualified Veterans and survivors. If you need help with daily activities, or you’re housebound, find out if you qualify.
The Program of Comprehensive Assistance for Family Caregivers
VA nursing homes, assisted living, and home health care
Health care for spouses, dependents, and family caregivers
DISABLED AMERICAN VETERANS
We stand ready to provide a lifetime of support to veterans of all generations, their families, and their survivors at no cost.
Website: https://www.dav.org
Caregiver Support: https://www.dav.org/get-help-now/dav-caregivers-support/
ELDERCARE LOCATOR
Find your local Area Agency on Aging that provides services for older adults and their families.
Phone: 1-800-677-1116
Website: https://eldercare.acl.gov/Public/Index.aspx
ELITE CRUISES AND VACATIONS TRAVEL
Dementia-Friendly Cruises and Caregiver Retreats
Website: www.elitecruisesandvacationstravel.com
Upcoming Dementia-Friendly Cruises
Connect with other caregivers on our cruises and find the support you need with caregiver circles and educational seminars on caregiving managing, self care, diagnosis/prognosis, and neuroplasticity concepts and activities. These sessions are exclusively for our group and feature new guest speakers on each voyage as well as our team of professionals including Kathy, a geriatric neurology nurse with adaptive technology certification. Additionally get the time to regroup, relax, and recharge with daily two hour respite sessions where our team will take over your caregiving duties and you have the break you deserve.
Cruises for Former Caregivers
Travel in a supported, welcoming group environment with other individuals who have similar life experiences and discover a new circle of friends who also love to explore the world. Take this time to redefine yourself and kick off this new chapter of your life.
NANA’S BOOK FOUNDATION
Providing books about Alzheimer’s and other disabilities for children and public libraries.
A public non-profit 501.c.3 (IRS approved) foundation created to honor lifelong Librarian Nancy Dulniak. Nancy had a fond love of books starting at a very early age. She loved to share her joy of reading to children, especially her grandchildren. Taken from this world way too early from Alzheimer’s, we are providing grade-appropriate books and resources about Alzheimer’s, dementia, and other disabilities to public libraries and students in Title I schools in her honor.
Website: www.NanasBooks.org
NEWPORT SENIOR LINK
Newport Senior Link is Central Florida’s Senior Placement Company serving Osceola, Orange, Seminole, Lake, Sumter, Marion, Volusia & Flagler Counties. Based on the individual budget, specific care needs and lifestyle preferences of the senior, we help families to navigate the process of choosing the right senior housing options.
Phone: 407.492.0595
Contact: cspears2@cfl.rr.com
Website: www.npseniorlink.com
MEALS OF LOVE
Meals of Love will deliver fresh, restaurant-made meals to homebound seniors and disabled adults in Orange, Seminole, Brevard and Osceola counties. In addition, a group of nine Central Florida nonprofit organizations funded by Senior Resource Alliance will also connect individuals to a network of resources for day-to-day needs.
Website: Meals of Love
PDF Download: Meals of Love
News Link: Orlando Sentinel Article – Meals of Love
MEALS ON WHEELS AMERICA
Website: www.mealsonwheelsamerica.org
Find a local provider: https://www.mealsonwheelsamerica.org/find-meals
NATIONAL ACADEMY OF ELDER LAW ATTORNEYS
The National Academy of Elder Law Attorneys (NAELA) is dedicated to improving the quality of legal services provided to older adults and people with disabilities.
Why Hire a NAELA Elder and Special Needs Law Attorney?
NAELA member attorneys have specialized knowledge and experience with the unique legal issues faced by older adults and people of all ages with disabilities. They can help individuals and families navigate complex legal systems to ensure the needs of their clients are met and that their rights are protected.
Website: www.naela.org
Find a lawyer: https://www.naela.org/findlawyer
ONE SENIOR PLACE
One Senior Place is a one-stop resource office and shopping center for all types of senior products and services. Completely unique, One Senior Place provides information, counseling, referrals, educational events and direct access to independent senior-focused businesses– all under one roof.
Phone: 321-323-7325 (Brevard/Space Coast)
Phone: 407-705-2042 (Orlando)
Website: www.oneseniorplace.com
ORLANDO HEALTH CENTER FOR AGING AND MEMORY DISORDER CLINIC
Website: https://www.orlandohealth.com/
Phone: 321.841.9700
RIGHT CHOICE ADULT CARE AND ACTIVITY CENTER
Our welcoming adult day care and activity center is located in Lake Mary and we lovingly serve members of Seminole County and Orange County, Florida communities. We offer an enjoyable day filled with lots of group activities and entertainment in a comfortable and spacious setting, ensuring all individuals’ therapeutic needs are catered to at all times.
Phone: (407) 574-4751
Cell Phone: (786) 355-9524
Website: www.rightchoiceadultdaycare.com
SENIORS BLUEBOOK
Orlando’s comprehensive and reliable source to find and compare Senior Housing such as Retirement Communities, Assisted Living, Memory Care and Skilled Nursing. At Home options like Home Health Care, Non-Medical Home Care, Caregiver Support and Education, and Hospice and Senior Resources.
Website: www.seniorsbluebook.com/senior-resources/orlando
SENIOR RESOURCE ALLIANCE – AREA AGENCY ON AGING
Senior Resource Alliance (SRA) is your local resource for accessing the many services and programs of the state and federal government, available to senior citizens, their caregivers and family members. SRA also is an objective clearinghouse for information and services offered by local, state and national organizations. We have been serving our community since 1985. Coordinate, develop, monitor, and evaluate/review services and resources for elders in Brevard, Orange, Osceola, and Seminole Counties.
Phone: 407-514-1800
Phone: 800-963-5337 (Elder Hotline)
Website: www.seniorresourcealliance.org
SHARE THE CARE
Services, education, training, and support to family caregivers, enabling them to maintain their family member at home, delaying or eliminating the need for institutional care.
Phone: 407-423-5311
Website: www.helpforcaregivers.org
STATE OF FLORIDA DEPARTMENT OF ELDER AFFAIRS
Promotes the health, safety, and independence of Florida’s seniors, their families, and caregivers.
Phone: 850-414-2000
Website: www.elderaffairs.state.fl.us/index
SYNEXUS
Clinical trial services provider.
Phone: 407-841-0502
Contact: info_fl@globalaes.com
Website: synexusfl.com
THE FIVE WISHES
Five Wishes is an easy-to-use legal advance directive document written in everyday language. It helps all adults, regardless of age or health, to consider and document how they want to be cared for at the end of life. It is America’s most popular living will with more than 40 million copies in circulation.
Five Wishes is unique among all other living will and healthcare agent forms because it speaks to all of a person’s needs: medical, personal, emotional and spiritual. Five Wishes also helps to guide and structure discussions with your family and physician, making conversations easier.
The Five Wishes Document for Individuals
Website: www.agingwithdignity.org
THE RESIDENTIAL HOME CARE NETWORK
The Residential Home Care Network is a consortium of Adult Family Care Homes and Assisted Living Facilities that provide care for your loved one in a “private home” setting. Our residents enjoy one on one services delivered by caring, compassionate professionals, and families enjoy peace of mind knowing their loved one is getting the personalized attention they need.
Phone: 321-300-6910
Contact: asktheprovider@gmail.com
Website: www.residentialhomecarenetwork.org
THE JEWISH PAVILION
Connecting elder-care community residents and their families with a caring Jewish community that provides life-enhancing resources and experiences.
Phone: 407-678-9363
Contact: admin@jewishpavilion.og
Website: www.jewishpavilion.org
TODAY’S CAREGIVER MAGAZINE
Articles, conferences, and resources for family caregivers.
Phone: 954-893-0550
Website: www.caregiver.com